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The autistic experience of overwhelm

Published: November 20, 2019
Last updated on November 28, 2024

In our previous post, Sensory Sunday #4, we asked what physical or mental symptoms you get as a result of being overstimulated, and I offered a description of my experience of sensory overload. In this post, I will describe my experiences of several types of overwhelm relating to autism.


Sensory overload

Type: sensory overwhelm

When I visit stores, the amount of visual information I process often gets to be too much. Yesterday Natalie and I stepped into a warehouse, and after half a minute I said, “I am already not feeling well. I will wait outside.”  What happens is that I see so much detail that I am quite literally getting sick. I experience a headache, and when it really gets too much, I become nauseous and start sweating.

There isn’t so much going on mentally, except for a great desire to go outside, or to seclude myself in a dark room. Outside, things are more distant, there is more openness, and a lot less detail. And in a dark room, there isn’t as much light coming into my eyes that needs to be processed, and we see less detail in the dark. As such, there is less to process, and I can breathe again.


Meltdown

Type: emotional overwhelm

Sensory overload doesn’t lead to meltdowns for me. It’s usually caused by anxiety and mental distress, but I found that when my sugar levels drop because I haven’t had protein in a while, that is a major contributor to my agitation and potential meltdowns. Either way, when my childhood traumas come up, I can lose control over my emotions. I become less rational, and excessively needing validation and compassion. Although sometimes even that isn’t enough, as I first need to vent my anger. I have a lot of suppressed rage that often comes out during a meltdown. Although I can be verbally aggressive in this state, it all comes from fear. I guess it’s a fairly child-like state.

In terms of physical symptoms, during a meltdown I experience an extreme amount of anxiety. I may experience stomach pain, and pressure on my chest. I don’t notice necessarily notice my physical symptoms, however, both due to alexithymia as well as focusing so much on the emotional overwhelm that there isn’t any mindfulness about bodily sensations.

In terms of mental symptoms, I guess I feel like a grave injustice is being done onto me. It makes me feel entitled to validation and compassion, which are things Natalie can’t necessarily offer me in such a state, as generally when I am having a meltdown, it means she is having one as well.

I get out of a meltdown by doing things that calm me. Generally, I will smoke cannabis, which helps me a lot. But I have also gone for extended walks. At first, I will loop on feelings of injustice and my anger. At a certain point, I think my anxiety diminishes enough so that I connect more with my upsetness than with the injustice I feel is done to me and the subsequent anger I feel towards that person. At that point, I start crying rather than expressing anger. I start to feel compassion for the other, and a lot of shame about my own behavior. It feels terrible not being in control of my emotions. And while I feel rational and justified during a meltdown, after the meltdown I realize how irrational I have been, how much I overidentified with my emotions, and how difficult of a situation I presented Natalie with (or whoever was in my path in the past).


Shutdown

Type: burnout

After a meltdown, a shutdown often follows. In this state, I am also emotionally overwhelmed, but in a passive way. What I mean by that is that I am no longer actively overwhelmed and out of control. Instead, it feels like I burned through my emotions. At this point, I will have trouble processing certain things, but no longer because the sensory or emotional information is too much for me, but because the emotional apparatus simply no longer works. So there is a lack of processing, rather than a desperate attempt at processing a lot.

What this feels like is a numbness both of the mind and the body. I feel a strange mix of apathy and contentedness. I guess because a lack of emotionality feels like quite a relief after a meltdown. I don’t wish to be apathetic generally, but after emotional overwhelm, not experiencing much in terms of emotions feels very welcome. Ahh, a break!

There is still a bodily sensation somewhat comparable to anxiety, but it doesn’t give me the feeling of pressure and discomfort the way anxiety does. The best way to describe it I feel is really that I burned through my emotions, but that may not mean anything to you. Besides, even though I think this is an apt description, I realize now that this is counterintuitively more a description of my bodily sensations than my mental ones. Mentally, I just feel exhausted. Physically, I guess in a way I feel things no longer impact me. Maybe numbness is the best way to describe it after all.

Or maybe it’s something I often say during or after a shutdown:

I feel like I have been hit by a truck.


Reported feelings of overwhelm

Autistic people also report the following feelings when it comes to overwhelm:

  1. Blood pressure changes
  2. Brain fog/clouding of consciousness
  3. Chest pain
  4. Confusion
  5. Dizziness
  6. Dissociation
  7. Disorientation
  8. Fragmented perception
  9. Headache
  10. Irrationality
  11. Irritability
  12. Nausea
  13. Neck pain (this seems to be somatization)
  14. Noise in head/ears
  15. Poor executive functioning
  16. Stomachache
  17. Trembling

And I’m sure the range of experiences doesn’t end here.


What is your experience of sensory overload, a meltdown, or a shutdown?

This article
was written by:
eva-silvertant

Eva Silvertant is a co-founder of Embrace Autism. She is living up to her name as a silver award-winning graphic designer, and is passionate about design, typography & typefaces (esp. from the late 19th century), astronomy, psychology—and her latest special interest: Soviet chess sets. Currently pursuing an MA in Psychology.

Diagnosed with autism at 25. Also, a trans woman; you may have known her as Martin Silvertant at some point.

Want to know more about Eva? Read her About me page.

Disclaimer

Although our content is generally well-researched
and substantiated, or based on personal experience,
note that it does not constitute medical advice.

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Star
Star
6 months ago

Does anyone else experience getting overwhelmed by ‘positive’ emotions? I have seen a lot of articles and blogs about people getting overwhelmed by anxiety or anger or sadness, but personally I mostly get overwhelmed by feelings like joy and excitement. It is annoying because it means I have to limit how much I can let myself feel happy emotions, because beyond a certain point I start struggling to breathe properly and feel nauseous and get chest pain etc., when at the same time the emotion is also nice to feel but it is just too much and it gets unbearable. I also notice that I need to stim a lot more when I am feeling any emotions strongly, but for joy and excitement it is often not like ‘happy stimming’ but more like ‘attempting-to-regulate stimming’. I wondered if anyone else experiences this because I haven’t seen it talked about much.

Henry Gladney
Henry Gladney
7 months ago

Could you comment on the differences between a meltdown and a panic attack? That qould be great! Thanks!

Kerry S
Editor
6 months ago
Reply to  Henry Gladney

This article has descriptions of meltdowns and shutdowns.

I can give you my experience of the difference, but note that this is just my experience and may not be true for everyone. In my experience, panic attacks tend to be triggered by fear, whereas meltdowns are due to stress and overwhelm. During or after a panic attack, I can usually identify a specific fear or trigger that set off the attack. Panic attacks tend to be shorter, and practicing self soothing methods can shorten them even further. Meltdowns are usually the cumulation of several different kinds of stress, usually related to autistic traits, such as bad sensory experiences or camouflaging for too long. While there might be a particular thing that sets off the meltdown, the reaction is to that AND everything that happened before it. Meltdowns often last a long time, even using self soothing techniques, need significant recovery time afterwards. I also find that I can delay but not stop a meltdown, usually to get myself to a safe environment.

Hope that helps!

Sue M.
Sue M.
7 months ago

I don’t generally drink but on social occasions I would have one or two drinks and used to joke that I was getting a hangover before I’d even finished the first one! Since realising that I am an aspie, it occurred to me that this was a sensory overload due to being in a social situation where there were people talking at once and there was so much pressure that I was putting on myself to pay attention to all the cues and everything else that was going on that my body was making me shut down and take myself out of that situation by giving me a headache and feeling of nausea! If I tried to ignore it, it would sometimes get so bad that I’d have to lie down in a darkened room for hours to recover. It never occured to me before that I wasn’t just getting a migrain type headache, so I just thought it was a ‘normal’ thing, as the other poster has said. Now I know, I just don’t put myself through that anymore.

Kerry S
Editor
7 months ago
Reply to  Sue M.

I’m glad you aren’t forcing yourself through that anymore! Understanding autism can have such a big impact on the way we treat ourselves, and it’s great you’re making changes that work for you.

AuDHDidi
1 year ago

I have been questioning my diagnosis because I didn’t believe I experienced meltdowns or shutdowns akin to what I’m stereotypically familiar with. Your account of how you feel during meltdowns and shutdowns finally made me realize otherwise; I thought what I was going through was just ‘normal’ and that everyone experiences it, so I had rejected that I experience anything different. But the description and order of the feelings you experienced were eerily the same as I have experienced often enough throughout my life!
I do have one question though. Is it always due to a certain trigger or an accumulation of certain types of triggers?

Kerry S
Editor
1 year ago
Reply to  AuDHDidi

From what I understand (and in my own experience), all sorts of different things can trigger a meltdown or shutdown. However, autistic people are all very different, so there may be some people who experience them with very consistent triggers!

Jennifer
Jennifer
1 year ago

I could have written the emotional meltdown part myself, I can relate so much.
Have you discovered any preventers or ways to recognise and see it coming?
More often than not leaves me feeling like a dreadful person… only now am beginning to understand its a meltdown

Kerry S
Editor
1 year ago
Reply to  Jennifer

It’s definitely an ongoing process learning how to manage meltdowns! Personally, I usually separate it into three components: recognising warning signs, diverting an oncoming meltdown, and dealing with a meltdown if it happens. A good neurodivergent informed therapist can help with this process a lot.

First, recognising warning signs. Emotional awareness and intelligence makes a big difference for me here: I try to take time to check in with myself throughout the day, since I might not realise I’m getting more emotionally turbulent if I don’t check in consciously. Things I watch out for are things like having “bigger” reactions to things that are normally easier for me to cope with, emotions building on each other and spiraling, wanting to be in the dark or alone, and even being physically clumsier, etc. The exact things to look out for are going to vary person to person, and it’s definitely a learning process to figure out what your warning signs are.

Second, diverting an oncoming meltdown. My first step when I feel a meltdown might be approaching is to try and reduce demands on me, give myself some space to rest and recover, and validate and be kind to myself. Can I cancel any events or tasks I’d planned to do today, can I get delivery for dinner instead of cooking, can I lie down in the dark for 20mins (or longer), etc. Most of the time everything feels like TOO MUCH, so reducing the things I’m doing can help that feeling. Very importantly, I try to not get angry or frustrated with myself: I often speak out loud to validate and comfort myself emotionally, reassure myself it’s ok, that it’s legitimately hard but I will get through this, etc. Getting upset about being upset only makes the situation worse!

Third, dealing with a meltdown if it happens. I don’t think any strategy exists for preventing meltdowns 100% of the time (at least for me) – life is hard and gets overwhelming sometimes, and melting down is how my system tends to respond to that. So for me it’s been very important to accept that meltdowns happen, and not beat myself up about it or take it to mean I’m a terrible person or anything like that. I can usually delay (but not stop) a meltdown now, which allows me to get to a space where I feel safe, gather things that can help me recover from and get through the meltdown, etc. I know it’s not an option for everyone, but I’ve found it’s much easier to deal with melting down in private by yourself than melting down in public or even with friends.

I hope some of that helps!

Julia
Julia
2 years ago

I always assumed I couldn’t be autistic because I don’t have meltdowns in the way I’d always perceived them to be e.g. anger or being ‘out of control’. Mine are always just a feeling of overwhelm by emotion and an inability to express or understand how I’m feeling. Thank you

Anna Libertin
Social media manager
2 years ago
Reply to  Julia

Absolutely – shutdowns are a common experience for autistic folks, just as meltdowns are!

Hanna
Hanna
2 years ago

I’ve been having a difficult time describing my current state, and I think this description of shutdown is spot on. Thank you!

Lew
Lew
4 years ago

I’ve just found your page and only read a couple of articles, but the two I’ve looked at have been very enlightening. My husband was recently diagnosed with ASD at the age of 36 and I’m trying to find resources that will help me understand what he is experiencing. Right now it’s hard for him to explain to me. I’m sure that will change as we go forward, but for the time being this has been really helpful and eye-opening as to how he may be experiencing the world and our interactions. Thank you so much.

Martin Silvertant
Admin
4 years ago
Reply to  Lew

It’s wonderful to see you’re trying to better understand your husband, and that you find our articles helpful with that. Thank you for the kind words!

Sonia
Sonia
5 years ago

Great post..consider looking into how Interoception may be able to help to identify what it is your feeling and once identified (takes practice) how to express it in a way that doesn’t overwhelm.Kelly Mahlers work on Interoception-online course..curriculum and journal may help.I suggest this as it’s being used with Autistic kids/adults and it’s helping. Im waiting hopefully on the kindness of a charity to purchase it all to work with my son.

Thomas Gisler
Thomas Gisler
5 years ago

I think this topic is part of, if not at THE core of what I’m dealing with as a late diagnosed adult. It is one thing to learn about my traits and how I am different. But healing and letting go of a traumatic and confusing past requires that I addresses how I have coped with my autism to this point in life. Reading your description makes me wonder if I’m not in some kind of chronic shut-down. I’m somaticizing my physical and emotional feelings as physical pain which I guess was easier to endure than emotional. I’ve always been very fatigued and now with age I am losing the strength to internalize it all as I have been doing. I really feel lost emotionally.. But I also feel, I’m on the right path to recovering what I’ve hidden within. It will just take time.

Martin Silvertant
Martin Silvertant
5 years ago
Reply to  Thomas Gisler

It sounds like you may be burned out, Thomas. In my understanding, it is indeed quite like chronic shutdown. So is depression. It takes time to heal the wounds, but also effort. I reduced the frequency of my therapy sessions to two times per month recently, but after last week I realize I need weekly therapy again. With the PTSD flashback I experienced last week, there are obviously things coming up that I need to process. Therapy gives me the guidance to do that. It’s worth looking into, Thomas. I know it can be scary and confrontational, but with a good therapist you will hugely speed up your healing process.

If you want to do it yourself though, I hope to write a post about what I have learned from my therapy, which I think will help others as well. It just feels too daunting right now, so I’m not sure when I will write it.

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